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100 VOICES to #CureSDS
Share your story to make a difference!

Share your story. Make an impact where it counts.

Be part of this global movement to show strength in numbers. Show researchers and regulators that we are ready for therapies and cures for SDS. It's as easy as 1-2-3.

Be part of the first 100 participants in SDS-GPS

Power the impact of the Patient Voice in research.

Join today!

A woman filling our the SDS-GPS survey on a tablet device. Shwachman-Diamond Syndrome Global Patient Survey and Partnering Program
Child with magehone and superhero cape, wearing the 100 Voices to #CureSDS campaign shirt for Shwachman-Diamond Syndrome

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Order by 2/7 to receive in time for rare disease day.

SDS PFDD or EL-PFDD Meeting for Shwachman-Diamond Syndrome social media graphic with magnifying slass focused on a family

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Let's make the SDS PFDD meeting the biggest and most impactful meeting ever!

In-person OR virtual.

Your voice matters. Join the meeting and be part of the Voice of the Patient Report for a long-lasting impact.

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