Eszter Hars, Ph.D., President and CEO, SDS AllianceJan 7SDS Science SnapshotsAmazing Opportunity to Share SDS Patient Perspectives with FDA: EL-PFDD Meeting Planned June 4th, 2025
Eszter Hars, Ph.D., President and CEO, SDS AllianceDec 8, 2024SDS Science SnapshotsSDS-POPS 2024 Recordings and Resources Now Available! SDS Alliance Blog 2024-12-08
Eszter Hars, Ph.D., President and CEO, SDS AllianceNov 24, 2024SDS Science SnapshotsInsights from the ESH Translational Research for IBMF Conference and the French Neutropenia Registry Day. SDS & Science Snapshots (2024-11-23)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 16, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-11-16)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 9, 2024SDS Science SnapshotsSDS and Diabetes: SDS & Science Snapshots (2024-11-09)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 3, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-11-02)
Eszter Hars, Ph.D., President and CEO, SDS AllianceNov 2, 2024SDS Alliance NewsAnnouncing the Winners of the 2024 Million Steps Closer to #CureSDS Challenge
Eszter Hars, Ph.D., President and CEO, SDS AllianceNov 2, 2024SDS Alliance NewsCelebrating Inaugural Global SDS Awareness Day and Action Week: November 1-7
Eszter Hars, Ph.D., President and CEO, SDS AllianceOct 12, 2024SDS Science SnapshotsSDS Alliance shares ideas at new FDA Rare Disease Innovation Hub kick-off Meeting. SDS & Science Snapshots (2024-10-26)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAOct 12, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-10-12)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAOct 5, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-10-05)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSASep 28, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-09-28)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSASep 14, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-09-07)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSASep 1, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-08-25)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAAug 17, 2024SDS Science SnapshotsNew Publication by the SDS Alliance Highlights SDS as a Therapeutic Target. SDS & Science Snapshots (2024-08-17)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAAug 4, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-08-03)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAJul 20, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-07-20)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAJul 13, 2024SDS Science SnapshotsFree Genomic Sequencing for SDS through New Collaboration with Rare Genomes Project. SDS & Science Snapshots (2024-07-13)
Eszter Hars, Ph.D., President and CEO, SDS AllianceJul 7, 2024SDS Patient Stories and NewsOctavian's SDS Story: A Rare Gem with EFL1
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAJun 8, 2024SDS Science SnapshotsSDS & Science Snapshots (2024-06-08)