Eszter Hars, Ph.D., President and CEO, SDS AllianceDec 20, 2019SDS Science NewsThe North American SDS Registry celebrates its 10 year anniversary by giving back to the communityThe SDS Registry celebrated by hosting the SDS Family Day (conference) in Boston, MA, US. A summary of the event was published by the SDS...
Eszter Hars, Ph.D., President and CEO, SDS AllianceJan 30, 2018SDS Patient Stories and NewsAfter Amazon mix-up, man becomes advocate for little boy with Shwachman-Diamond SyndromeIn 2018, a wonderful friendship unfolded as a result of a mishap. Now the SDS family got an extra super advocate as a result. Read the...