Octavian's SDS Story: A Rare Gem with EFL1
"We have reached the stage of acceptance and trying to live life the fullest despite SDS" Shares Octavian's dad, Raul. Read this Romanian...
top of page
All Blogs
Alex's SDS Story and Diagnostic Odyssey (US)
"My journey as a mother of a child with a rare disease began when I had my 20-week ultrasound while pregnant with my son Alex", shares...
How Elijah inspired Hero Kids in the Making - an SDS Story from the US
I wanted my son to see himself as a brave hero overcoming his reasonable fears associated with the pain and uncharted aspects of his medical
bottom of page