2021 Annual Global Virtual Fundraiser - Two Million Steps Closer to #CureSDS - Huge Success
At the end of September, we conducted the second annual global virtual fundraiser to support SDS research. The theme this year was TWO...
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Bringing Shwachman-Diamond Syndrome to the Forefront
From the Founder, Dr. Eszter Hars, Ph.D. This week, I had the great honor to be invited to speak on a patient-centered panel at the NICER...
Betty's SDS Story and Journey through Bone Marrow Transplant
"The news of her diagnosis was hard to hear, but it was what it was, so my husband and I just decided to be positive." Shares Betty's mom...
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