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Gracie van Brunt – singer, songwriter, and rare disease advocate – shares her story in a podcast.
Gracie van Brunt – singer, songwriter, and rare disease advocate – shares her story in a podcast.
Max's Story: A short insight as part of the 2020 Jeans for Genes
Max and his family are raising awareness for Shwachman-Diamond Syndrome and rare disease by participating again in the 2020 Jeans for Genes
Gracie's Story: Finding my voice and insights into my BMT
Gracie - a young adult SDS patient in the US, shares her story about finding her voice and her bone marrow transplant.
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