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Max's Story: A short insight as part of the 2020 Jeans for Genes
Max and his family are raising awareness for Shwachman-Diamond Syndrome and rare disease by participating again in the 2020 Jeans for Genes
Gracie's Story: Finding my voice and insights into my BMT
Gracie - a young adult SDS patient in the US, shares her story about finding her voice and her bone marrow transplant.
About a mother's relentless quest for a cure for SDS
By Emily Williams / Boston Children's Hospital In this post, you can learn about the passion and efforts of a mother to a young daughter...
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