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Teen author dedicates a children’s book to her twin brother with Shwachman-Diamond syndrome
Boston Children's Hospital's Patient Stories section features an SDS family's story. Read the whole story, here. Sophia Namazy, 14, wrote...
How families are reshaping Shwachman-Diamond syndrome research
By Emily Williams / Boston Children's Hospital In this post, you can learn about the experiences of two families affected by...
Share with us your SDS journey. It is a wonderful resources for new families and old friends alike.
We can help you write if you like. Simply contact us at CureSDS@gmail.com. Welcome to your blog post. Use this space to connect with your...
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