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All Blogs & News
2023 Annual Global Virtual Fundraiser - 4 Million Steps Closer to #CureSDS - Huge Success
This October, we conducted the 4th annual global virtual fundraiser to support SDS research. The theme this year was 4 MILLION STEPS...
SDS Community Represented at the Chan Zuckerberg Initiative's Science and Society Meeting
This September, we took to opportunity to introduce the Shwachman-Diamond Syndrome community at the Chan Zuckerberg Initiative (CZI)...
Shwachman-Diamond Syndrome Receives ICD-10 Code, Paving the Way for Improved Care and Therapies
Shwachman-Diamond Syndrome receives new ICD-10 Diagnostic Code, Paving the Way For Improved Patient Care and New Treatment Options. Code...
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