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All Blogs & News
Introducing Ribo & Somi, the RIBOSOME Superheroes
The last day of February is Rare Disease Day, but for us - rare disease families and advocates - every day is rare disease day. But no...
Our Team is Growing: Welcome Lisa Superina as our new Family and Community Engagement Ambassador.
Lisa lives on Long Island, New York, with her husband and four daughters. Her two youngest daughters, Nora and Kayla, were genetically...
SDS Alliance Awarded Chan Zuckerberg Initiative “Rare As One” Grant
Woburn, MA (November 3rd, 2021) — The SDS Alliance is delighted to announce that the organization has been awarded a prestigious grant...
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