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All Blogs & News
Our Team is Growing: Welcome Lisa Superina as our new Family and Community Engagement Ambassador.
Lisa lives on Long Island, New York, with her husband and four daughters. Her two youngest daughters, Nora and Kayla, were genetically...
SDS Alliance Awarded Chan Zuckerberg Initiative “Rare As One” Grant
Woburn, MA (November 3rd, 2021) — The SDS Alliance is delighted to announce that the organization has been awarded a prestigious grant...
2021 Annual Global Virtual Fundraiser - Two Million Steps Closer to #CureSDS - Huge Success
At the end of September, we conducted the second annual global virtual fundraiser to support SDS research. The theme this year was TWO...
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