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All Blogs & News
Amazing Opportunity to Share SDS Patient Perspectives with FDA: EL-PFDD Meeting Planned June 4th, 2025
Be a Speaker/Panelist! The FDA has accepted our request to hold an Externally-Led Patient Focused Drug Development Meeting for SDS on 6/4/25
SDS-POPS 2024 Recordings and Resources Now Available! SDS Alliance Blog 2024-12-08
In this issue: SDS-POPS 2024 covers a wider range of topics, including SDS patient voice, stories, film, and advocacy, and SDS research and
Insights from the ESH Translational Research for IBMF Conference and the French Neutropenia Registry Day. SDS & Science Snapshots (2024-11-23)
In this issue: SDS Alliance brings the patient voice to two scientific conferences in Paris, France this month. Read a brief overview here.
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