2022 Annual Global Virtual Fundraiser - Three Million Steps Closer to #CureSDS - Huge Success Again
This October, we conducted the third annual global virtual fundraiser to support SDS research. The theme this year was THREE MILLION...
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Introducing Ribo & Somi, the RIBOSOME Superheroes
The last day of February is Rare Disease Day, but for us - rare disease families and advocates - every day is rare disease day. But no...
2021 Annual Global Virtual Fundraiser - Two Million Steps Closer to #CureSDS - Huge Success
At the end of September, we conducted the second annual global virtual fundraiser to support SDS research. The theme this year was TWO...
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