Eszter Hars, Ph.D., President and CEO, SDS AllianceAug 12, 2020SDS Patient Stories and NewsHealing Henley. An SDS Story told by Henley's mom, Jess
Eszter Hars, Ph.D., President and CEO, SDS AllianceAug 12, 2020SDS Patient Stories and NewsCarter and Skye's Story: A short video for Maddie Riewordt's Vision
Eszter Hars, Ph.D., President and CEO, SDS AllianceAug 12, 2020SDS Patient Stories and NewsGracie van Brunt – singer, songwriter, and rare disease advocate – shares her story in a podcast.
Eszter Hars, Ph.D., President and CEO, SDS AllianceJun 19, 2020SDS Patient Stories and NewsMax's Story: A short insight as part of the 2020 Jeans for Genes
Eszter Hars, Ph.D., President and CEO, SDS AllianceMay 23, 2020SDS Patient Stories and NewsGracie's Story: Finding my voice and insights into my BMT
Eszter Hars, Ph.D., President and CEO, SDS AllianceFeb 21, 2020SDS Patient Stories and NewsAbout a mother's relentless quest for a cure for SDS
Eszter Hars, Ph.D., President and CEO, SDS AllianceJan 27, 2020SDS Science NewsBone marrow-on-a-chip provides new research directions for Shwachman-Diamond syndrome
Eszter Hars, Ph.D., President and CEO, SDS AllianceDec 20, 2019SDS Science NewsThe North American SDS Registry celebrates its 10 year anniversary by giving back to the community
Eszter Hars, Ph.D., President and CEO, SDS AllianceOct 28, 2019SDS Patient Stories and NewsTeen author dedicates a children’s book to her twin brother with Shwachman-Diamond syndrome
Eszter Hars, Ph.D., President and CEO, SDS AllianceOct 18, 2019SDS Patient Stories and NewsHow families are reshaping Shwachman-Diamond syndrome research
Eszter Hars, Ph.D., President and CEO, SDS AllianceJul 12, 2019SDS Patient Stories and NewsShare with us your SDS journey. It is a wonderful resources for new families and old friends alike.
Eszter Hars, Ph.D., President and CEO, SDS AllianceJul 12, 2019SDS Patient Stories and NewsDo you have an SDS story to tell? Would you like to share your SDS journey with the SDS community?
Eszter Hars, Ph.D., President and CEO, SDS AllianceJan 30, 2018SDS Patient Stories and NewsAfter Amazon mix-up, man becomes advocate for little boy with Shwachman-Diamond Syndrome
Eszter Hars, Ph.D., President and CEO, SDS AllianceOct 3, 2016SDS Patient Stories and NewsA mom from NZ explains how her rock ‘n roll lifestyle was turned upside down by SDS.
