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SDS Events - Global
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Global SDS Family Coffee Chat
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Upcoming and Past Events
複数の日付1月12日(日)Virtual event2025年1月12日 15:00 – 17:00Virtual eventMonthly virtual get-together to build community and support.
10月20日(日)https://www.sdsalliance.org/sds-pops2024年10月20日 13:00 – 17:00https://www.sdsalliance.org/sds-popsThe only global, virtual meeting of its kind to provide patients, caregivers, scientists, physicians, and all other stakeholders with an opportunity to connect and discuss all things related to Shwachman-Diamond Syndrome research and advocacy.
5月19日(日)Virtual. Register at sdsalliance.org/cce2024年5月19日 14:00 – 15:00 GMT-4Virtual. Register at sdsalliance.org/cce
4月13日(土)free virtual event2024年4月13日 13:00 – 19:00 GMT-4free virtual eventThis meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
5月20日(土)Virtual event2023年5月20日 10:00 – 15:00 GMT-4Virtual eventThe first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
4月18日(火)Robinson College, Cambridge, UK2023年4月18日 9:00 GMT-4 – 2023年4月21日 13:00 GMT-4Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UKThis Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
3月24日(金)Paris2023年3月24日 9:00 – 16:00 GMT+1Paris, Paris, FranceNous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
4月30日(土)Virtual2022年4月30日 12:00 – 18:00 GMT-4VirtualThe National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
10月24日(土)Virtual run/walk, location of your choice2020年10月24日 7:00 GMT-4 – 2020年11月01日 23:00 GMT-5Virtual run/walk, location of your choiceIt's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
7月12日(日)Camp Sunshine, Cosco, ME, USA2020年7月12日 14:00 GMT-4 – 2020年7月16日 10:00 GMT-4Camp Sunshine, Cosco, ME, USA, Cosco, MESDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
2月29日(土)Painting with a Twist, North Andover, MA2020年2月29日 14:00 – 17:00 GMT-5Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USASDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
9月15日(日)Boston, MA2019年9月15日 8:00 – 16:00 GMT-4Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
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