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SDS Events - Global
2025년 1월
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오후 3:00
Global SDS Family Coffee Chat
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Community Webinar/Q&A about the SDS PFDD meeting planned for this summer
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Upcoming and Past Events
복수 날짜2025년 2월 09일 오후 3:00 – 오후 5:00Virtual eventMonthly virtual get-together to build community and support.
2025년 1월 23일 오후 4:00 – 오후 5:00Zoom
2024년 10월 20일 오후 1:00 – 오후 5:00https://www.sdsalliance.org/sds-popsThe only global, virtual meeting of its kind to provide patients, caregivers, scientists, physicians, and all other stakeholders with an opportunity to connect and discuss all things related to Shwachman-Diamond Syndrome research and advocacy.
2024년 5월 19일 오후 2:00 – 오후 3:00 GMT-4Virtual. Register at sdsalliance.org/cce
2024년 4월 13일 오후 1:00 – 오후 7:00 GMT-4free virtual eventThis meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
2023년 5월 20일 오전 10:00 – 오후 3:00 GMT-4Virtual eventThe first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
2023년 4월 18일 오전 9:00 GMT-4 – 2023년 4월 21일 오후 1:00 GMT-4Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UKThis Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
2023년 3월 24일 오전 9:00 – 오후 4:00 GMT+1Paris, Paris, FranceNous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
2022년 4월 30일 오후 12:00 – 오후 6:00 GMT-4VirtualThe National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
2020년 10월 24일 오전 7:00 GMT-4 – 2020년 11월 01일 오후 11:00 GMT-5Virtual run/walk, location of your choiceIt's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
2020년 7월 12일 오후 2:00 GMT-4 – 2020년 7월 16일 오전 10:00 GMT-4Camp Sunshine, Cosco, ME, USA, Cosco, MESDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
2020년 2월 29일 오후 2:00 – 오후 5:00 GMT-5Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USASDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
2019년 9월 15일 오전 8:00 – 오후 4:00 GMT-4Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
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