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Featured Events & News

SDS PFDD Meeting

Externally-Led Patient-Focused Drug Development Program (EL-PFDD) meeting for Shwachman-Diamond Syndrome.  June 4th, 2025. Cinicnnatti, OH and Virtual via Zoom.

Catch up on the summary and video recording 
of SDS POPS 2024, our global virtual patient advocacy and partnering summit.

person looking at a laptop screen to access SDS-POPS Shwachman-Diamond Syndrome Patient Advocacy and Collaboration Platform

Featured News

Featured News on News and Events
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