News and Events
Featured Event
Join us live this fall at SDS POPS, our global virtual patient advocacy and partnering summit.
SDS and Community News
Featured News
SDS-POPS 2024 Recordings and Resources Now Available! SDS Alliance Blog 2024-12-08
SDS Alliance shares ideas at new FDA Rare Disease Innovation Hub kick-off Meeting. SDS & Science Snapshots (2024-10-26)
New Publication by the SDS Alliance Highlights SDS as a Therapeutic Target. SDS & Science Snapshots (2024-08-17)
Free Genomic Sequencing for SDS through New Collaboration with Rare Genomes Project. SDS & Science Snapshots (2024-07-13)
Shwachman-Diamond Syndrome Receives ICD-10 Code, Paving the Way for Improved Care and Therapies
SDS Cell Biobank Pilot Project a success!
SDS Alliance Meets with the FDA
SDS Alliance meets with the White House Cancer Moonshot Team
SDS Alliance is Awarded JumpStart Grant for iPSC Development
Mouse Model Project Update: Phase I complete!
Dr. Eszter Hars chosen by The Milken Institute to join FasterCures LeaderLink Program
SDS Alliance Awarded Chan Zuckerberg Initiative “Rare As One” Grant
Elevating Shwachman-Diamond Syndrome's Standing
Bringing Shwachman-Diamond Syndrome to the Forefront
Mouse Model Project: Meet the Scientists!
Advocating for SDS Research at Rare Drug Development Symposium
The SDS Alliance Launches Mouse Model Project with The Jackson Laboratory
A Cure for SDS: Our Mission