After Amazon mix-up, man becomes advocate for little boy with Shwachman-Diamond SyndromeEszter Hars, Ph.D., President and CEO, SDS AllianceJan 30, 2018In 2018, a wonderful friendship unfolded as a result of a mishap. Now the SDS family got an extra super advocate as a result. Read the news articles and watch the newscast from various outlets, using the links below.https://www.fox26houston.com/news/amazon-workers-misplaced-keys-helps-raise-awareness-for-boys-rare-disease https://www.khou.com/mobile/article/news/after-amazon-mix-up-man-becomes-advocate-for-little-boy-with-rare-disease/285-511342480
In 2018, a wonderful friendship unfolded as a result of a mishap. Now the SDS family got an extra super advocate as a result. Read the news articles and watch the newscast from various outlets, using the links below.https://www.fox26houston.com/news/amazon-workers-misplaced-keys-helps-raise-awareness-for-boys-rare-disease https://www.khou.com/mobile/article/news/after-amazon-mix-up-man-becomes-advocate-for-little-boy-with-rare-disease/285-511342480
Amazing Opportunity to Share SDS Patient Perspectives with FDA: EL-PFDD Meeting Planned June 4th, 2025
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